Yesterday, we shared the news that the FDA is requiring Soleno to perform an additional clinical trial of DCCR in the PWS population. We recognize that this news comes as a disappointment to many who have been following this trial and hoping for a different outcome. PWSA | USA and FPWR are working...
Important Regulatory Update from Soleno Therapeutics on DCCR for the Treatment of PWS..... Click below for the full release. https:// conta.cc/3er7LwZ
Today is #EmployeeAppreciationDay! PWSA | USA is grateful for all of the dedicated staff who work tirelessly on be… https://t.co/rsNuCTr7zO
Shop AmazonSmile to support our efforts to save and transform lives every time you buy online. It’s the same… https://t.co/bREGInWnXt
The 2021 Virtual PWSA | USA National Convention 🌴 June 22nd – 26th, 2021 An exciting virtual format with a fantas… https://t.co/QcvNl9NG8f
You may not know Gene and Fausta Deterling, but they changed your life and the life of your child with PWS. Read mo… https://t.co/BhmMOP1s0r
Good News is Found in Path for PWS: A Family’s Story of Hope https://t.co/UvpruawjeF
"I love playing with my grandson, who has Prader-Willi syndrome. We made a frog puppet from a paper bag and he was… https://t.co/5EEZ1JJQ7J
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